Jesse's Journey

Lisa McCoy Joins Defeat Duchenne Canada as New CEO

Retrieved on: 
Tuesday, October 24, 2023
Heart, American Cancer Society, Jesse's Journey, Heart and Stroke Foundation of Canada, Tourette Canada, Multiple Sclerosis Society, Duchenne muscular dystrophy, Executive, Stroke, Patient, Canadian Cancer Society, Management, Nursing, Duchenne

Defeat Duchenne Canada appoints Lisa McCoy as new CEO.

Key Points: 
  • Defeat Duchenne Canada appoints Lisa McCoy as new CEO.
  • "I am thrilled to join the Defeat Duchenne Canada team and contribute to the vital vision: a future without Duchenne," said Lisa McCoy.
  • "We are confident that Lisa will provide the visionary leadership required to take Defeat Duchenne Canada to new heights," said Brain Atkinson, Chair of the Board of Directors at Defeat Duchenne Canada.
  • Lisa McCoy assumes her role as CEO of Defeat Duchenne Canada immediately.

Defeat Duchenne Canada grants 1.14 million dollars to Duchenne muscular dystrophy research

Retrieved on: 
Wednesday, June 15, 2022
Hope, Government, Leadership, Jesse's Journey, National, Health, Quality of life, HIV disease progression rates, History, Duchenne muscular dystrophy, John Worsfold, Muscular dystrophy, Life, Dietary supplement, Medical device, Duchenne, Research

Defeat Duchenne Canada (formerly Jesse's Journey) has been Canada's largest funder of Duchenne research for more than 27 years.

Key Points: 
  • Defeat Duchenne Canada (formerly Jesse's Journey) has been Canada's largest funder of Duchenne research for more than 27 years.
  • Defeat Duchenne Canada grants 1.14 million dollars to Duchenne muscular dystrophy research.
  • One in every 5,000 boys is born with Duchenne muscular dystrophy, the most common fatal form of muscular dystrophy.
  • Defeat Duchenne Canada is the country's only national charity dedicated to ending Duchenne muscular dystrophy.

Jesse's Journey and Parent Project Muscular Dystrophy Award $172,000 (CAD) Clinical Fellowship in Duchenne Endocrinology and Bone Fragility

Retrieved on: 
Wednesday, June 16, 2021
Muscular dystrophy, Branches of biology, Duchenne, Jesse's Journey, Dystrophy, Dystrophin, Health, Medicine, Biostrophin, SNTB1

HACKENSACK, N.J., June 16, 2021 /PRNewswire/ -- Parent Project Muscular Dystrophy (PPMD) , a US nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne) , and Jesse's Journey , Canada's leading charity fighting to defeat Duchenne,today announced a collaborative research award of $172,000 (CAD) in support of a two-year Clinical Fellowship in Duchenne Endocrinology and Bone Fragility.

Key Points: 
  • HACKENSACK, N.J., June 16, 2021 /PRNewswire/ -- Parent Project Muscular Dystrophy (PPMD) , a US nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne) , and Jesse's Journey , Canada's leading charity fighting to defeat Duchenne,today announced a collaborative research award of $172,000 (CAD) in support of a two-year Clinical Fellowship in Duchenne Endocrinology and Bone Fragility.
  • Because people with Duchenne do not have dystrophin (a protein found in muscle), their skeletal muscles gradually become weak.
  • Jesse's Journey is Canada's leading charity fighting to defeat Duchenne muscular dystrophy the most common fatal genetic disease diagnosed in childhood.
  • Parent Project Muscular Dystrophy (PPMD) fights every single battle necessary to end Duchenne.

Jesse's Journey grants $1M toward the launch of a clinical trial for Duchenne muscular dystrophy in Canada

Retrieved on: 
Wednesday, June 10, 2020
Muscular dystrophy, RTT, Organ systems, Health research, Jesse's Journey, Health, Medicine, Duchenne, Dystrophy, Vamorolone, Biostrophin, Draft:CureDuchenne

The funding from Jesse's Journey ensures that sites across Canada will be supported to recruit boys with Duchenne into the new study.

Key Points: 
  • The funding from Jesse's Journey ensures that sites across Canada will be supported to recruit boys with Duchenne into the new study.
  • "Families living with Duchenne across Canada and the academic medical centers have been amazing collaborators with the vamorolone development team.
  • Jesse's Journey is Canada's leading charity in the fight to defeat Duchenne muscular dystrophy.
  • ReveraGen was founded in 2008 to develop first-in-class dissociative steroidal drugs for Duchenne muscular dystrophy and other chronic inflammatory disorders.

CureDuchenne Ventures Announces The "CureDuchenne Ventures 2020 Pitch Contest," To Award Two $25,000 Prizes For Novel Ideas In Duchenne Muscular Dystrophy Therapy Development

Retrieved on: 
Tuesday, June 9, 2020
RTT, Duchenne, Muscular dystrophy, Dystrophy, Medicine, Health, Draft:CureDuchenne, Branches of biology, Jesse's Journey

Our recent $1M seed investment into Myosana Therapeutics , exemplifies our commitment to funding and supporting next generation gene therapy research."

Key Points: 
  • Our recent $1M seed investment into Myosana Therapeutics , exemplifies our commitment to funding and supporting next generation gene therapy research."
  • For over a decade, CureDuchenne Ventures has funded more than 20 promising research projects resulting in six successful exits to advance treatments for Duchenne.
  • The CureDuchenne Ventures Pitch Contest creates a new platform that encourages and supports innovative ideas to accelerate research for the Duchenne community.
  • The two (2) eligible entrants with the most promising ideas in Duchenne Muscular Dystrophy therapy development will each win $25,000.

CureDuchenne Inspires Duchenne Community to Raise Awareness and Funds for a Cure on World Duchenne Day

Retrieved on: 
Tuesday, September 3, 2019
General Health, Health, Infectious diseases, Philanthropy, Fund Raising, Foundation, Muscular dystrophy, Duchenne, Dystrophy, Draft:CureDuchenne, Jesse's Journey

CureDuchenne, the leading global nonprofit focused on finding and funding a cure for Duchenne muscular dystrophy, is encouraging the Duchenne community to take action on this World Duchenne Day, September 7th,to raise awareness of Duchenne muscular dystrophy and the importance of finding and funding a cure to save the lives of the 300,000 boys and young men living with Duchenne around the world.

Key Points: 
  • CureDuchenne, the leading global nonprofit focused on finding and funding a cure for Duchenne muscular dystrophy, is encouraging the Duchenne community to take action on this World Duchenne Day, September 7th,to raise awareness of Duchenne muscular dystrophy and the importance of finding and funding a cure to save the lives of the 300,000 boys and young men living with Duchenne around the world.
  • Taking action is simple and anyone of any age can participate:
    Go to: https://www.cureduchenne.org/world-duchenne-day/ to purchase CureDuchennes limited edition World Duchenne Day T-shirts.
  • Change Facebook profile pictures to one of the World Duchenne Day profile frames on the CureDuchenne Facebook page.
  • Post photos wearing the World Duchenne Day T-shirts on social media telling family, friends and colleagues about the special day and why it is important to fund a cure.