Eugene Washington

The National Eczema Association Approved for $250,000 Engagement Award from PCORI

Retrieved on: 
Monday, March 18, 2024
CER, Communication, Eugene Washington, Patient, Research, Quality of life, Nature, Dermatitis, MBS, Investment, MPH, Way, NEA, FDA, Nursing

NOVATO, Calif., March 18, 2024 /PRNewswire/ -- The National Eczema Association (NEA) has been approved for a $250,000 funding award through the Eugene Washington PCORI Engagement Award Program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI). The award will support a project titled "Paving the Way towards Meaningful Partnerships: Fostering Regional PCOR to Enhance Eczema Outcomes." The award period spans two years, from February 1, 2024 through Jan 31, 2026.

Key Points: 
  • NOVATO, Calif., March 18, 2024 /PRNewswire/ -- The National Eczema Association (NEA) has been approved for a $250,000 funding award through the Eugene Washington PCORI Engagement Award Program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI).
  • The award will support a project titled "Paving the Way towards Meaningful Partnerships: Fostering Regional PCOR to Enhance Eczema Outcomes."
  • The PCORI Engagement Award will be directed by co-project leads Wendy Smith Begolka, MBS, chief strategy officer at NEA and Jessica K. Johnson, MPH, director of community engagement at NEA.
  • For more information on the PCORI Engagement Award and NEA's funded project, visit here .

Dysgraphia Life Launches a $250,000 Engagement Award Project to Promote Research

Retrieved on: 
Tuesday, February 14, 2023
CER, Thomas Power, Caregiver, Science, Independent Payment Advisory Board, Learning disability, Learning, Dysgraphia, Student, Eugene Washington, PCORI, American Occupational Therapy Association, Comparative effectiveness research, American Occupational Therapy Foundation, Architect, Patient, Hospital, Nameplate capacity, Research, Health, Patient-Centered Outcomes Research Institute, Reading, Parent, Congress, Children's Hospital of Philadelphia, Dyslexia, Johns Hopkins University, Philadelphia, DRS, Nursing

VIENNA, Va., Feb. 14, 2023 /PRNewswire/ -- Dysgraphia Life is launching a new project that was approved for a $250,000 award through the Eugene Washington PCORI Engagement Awards program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI). This project, Building Capacity for Patient Centered Outcomes Research in the Dysgraphia Community, will focus on building awareness, engagement, and research capacity for specific learning disability of written expression or dysgraphia.

Key Points: 
  • VIENNA, Va., Feb. 14, 2023 /PRNewswire/ -- Dysgraphia Life is launching a new project that was approved for a $250,000 award through the Eugene Washington PCORI Engagement Awards program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI).
  • This project, Building Capacity for Patient Centered Outcomes Research in the Dysgraphia Community, will focus on building awareness, engagement, and research capacity for specific learning disability of written expression or dysgraphia.
  • "We are honored to have been selected by PCORI for funding of this important work," said Dr. Jennifer C. King, Founder and President of Dysgraphia Life.
  • People with dysgraphia need more research and clear evidence on what interventions and management strategies can best help them succeed."

Palo Alto Non-Profit Receives Two Significant, Multi-Year Awards for Capacity-Building and Network-Building

Retrieved on: 
Thursday, May 12, 2022
CZI, Chan Zuckerberg Initiative, Patient-Centered Outcomes Research Institute, Foundation, Patient, Parent, Health, Science, Eugene Washington, Caregiver, Birth, Research, Child, Conference, PCORI, Congress, Organization, PALO, Muscle weakness, Ecosystem, Diagnosis, Nemaline myopathy, Pharmaceutical industry, Medicine

PALO ALTO, Calif., May 12, 2022 /PRNewswire/ -- A Foundation Building Strength (AFBS), a 501©3 non-profit has been approved for two major awards that will significantly benefit the Nemaline Myopathy (NM) community:

Key Points: 
  • "I'm eager to work more closely with families around the world over the next two years."
  • A Foundation Building Strength was founded in 2008 by two Palo Alto parents of a child affected by Nemaline Myopathy (NM), a rare congenital condition causing incurable muscle weakness.
  • AFBS is the largest organization that operates solely to advance research of NM and support families affected by it.
  • AFBS works to create a fully functioning NM ecosystem, where researchers, clinicians, and the affected community supports each other to ease the NM burden and advance research.