MUSCULAR DYSTROPHY ASSOCIATION


Associated tags: Muscular dystrophy, Dystrophy, ALS, MDA, Research, Muscular Dystrophy Association, Neuromuscular disease, Pharmaceutical industry, Degenerative disease, Doctor of Philosophy, Patient

Locations: UNITED STATES, POMPE, MISSOURI, TX, WASHINGTON, SC, MN, NEW YEAR, FORT LAUDERDALE, RARE, FL, DC, ROME, CHICAGO, IL, US, NEW YORK

Burn Boot Camp and Muscular Dystrophy Association (MDA) Join Forces, Helping Families Live Longer and Grow Stronger

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Monday, June 27, 2022
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CHARLOTTE, N.C., June 27, 2022 /PRNewswire/ -- Burn Boot Camp, a leading fitness franchise with a mission and passion for empowering communities, is proud to be teaming up with Muscular Dystrophy Association (MDA) for the sixth annual 'Be Their Muscle' event taking place on Saturday, July 30th or Sunday, July 31st (depending on the location). To find your nearest location and registration for the "Be Their Muscle" event visit:   https://www.mda.org/burnbootcamp2022.

Key Points: 
  • Throughout the partnership, the Burn Boot Camp and MDA teams have worked to bring communities together, empowering people of all ages living with neuromuscular disease to pursue their passions and live independent lives.
  • This year, on Saturday, July 30, or Sunday, July 31 (depending on the location), community members are invited to visit their local Burn Boot Camp gym to participate in the "Be Their Muscle" fundraising camp.
  • "We're honored to continue supporting the Muscular Dystrophy Association through this annual event that brings together our community and aims to empower the people MDA serves to live longer, more independent lives," said Devan Kline, Co-Founder and CEO of Burn Boot Camp.
  • "At the Muscular Dystrophy Association, families and communities are at the heart of our mission," said Kristine Welker, Chief of Staff at MDA.

Muscular Dystrophy Association Announces MDA Rivals, A Streaming Event Featuring Special Guests Including Indianapolis Colts Running Back Nyheim Hines and More

Retrieved on: 
Wednesday, June 8, 2022
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NEW YORK, June 8, 2022 /PRNewswire/ -- What/Where/When: The Muscular Dystrophy Association (MDA) will host "MDA Rivals," a one-day streaming event featuring the stars of the MDA's Let's Play gaming community and professional streamers, including Indianapolis Colts running back and the MDA 2022 National Spokesperson Nyheim Hines, on Saturday, June 18, 2022 from 7-8pm ET on Twitch.

Key Points: 
  • Participants will earn prizes and have the opportunity to win sponsored product giveaways including signed jerseys and footballs from Hines.
  • Nyheim Hines , Indianapolis Colts Running Back, 2022 MDA National Spokesperson
    MDA partners with Hines, who has a personal connection to the critical need to drive awareness, improve care, advance research, and advocate for people living with muscular dystrophy, ALS, and related neuromuscular diseases.
  • Hines' mother lives with limb-girdle muscular dystrophy (LGMD) and shares his story in the video and audio PSAs with MDA National Ambassador Ethan LyBrand, who lives with Duchenne muscular dystrophy.
  • Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases.

MUSCULAR DYSTROPHY ASSOCIATION TRIBUTE AWARDS TO HONOR DR. STANLEY H. APPEL OF HOUSTON METHODIST, MARCUS MANN AND MAANAV GUPTA ON LOU GEHRIG DAY, JUNE 2

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Thursday, May 26, 2022
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NEW YORK, May 26, 2022 /PRNewswire/ -- The Muscular Dystrophy Association (MDA) will present MDA Tribute Awards to Dr. Stanley H. Appel, Marcus Mann, and Maanav Gupta on June 2, from 6-8:30pm CT at an in-person event at Hotel ZaZa in Memorial City, Houston, Texas. Throughout MDA's 70+ year history, local volunteers and communities have continued to be at the heart of the organization's mission to improve the lives of people living with neuromuscular disease. The MDA Tribute Award honors the legacy and life's work of those who have been tireless in their efforts to support the patients and families we serve.

Key Points: 
  • NEW YORK, May 26, 2022 /PRNewswire/ -- The Muscular Dystrophy Association (MDA) will present MDA Tribute Awards to Dr. Stanley H. Appel, Marcus Mann, and Maanav Gupta on June 2, from 6-8:30pm CT at an in-person event at Hotel ZaZa in Memorial City, Houston, Texas.
  • In addition to the MDA Tribute Awards event, the MDA Tribute Tour continues in Houston from June 2 to 6.
  • The MDA Tribute Tour in Houston will culminate at the Houston Astros celebration of Lou Gehrig Day on June 6.
  • The MDA Tribute Award event being held on June 2 coincides with 'Lou Gehrig Day,' as proclaimed by Major League Baseball.

MUSCULAR DYSTROPHY ASSOCIATION CELEBRATES LOU GEHRIG DAY AT MAJOR LEAGUE BASEBALL GAMES IN JUNE

Retrieved on: 
Wednesday, May 25, 2022
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NEW YORK, May 25, 2022 /PRNewswire/ -- The Muscular Dystrophy Association (MDA) will honor Major League Baseball's (MLB) recognition of Lou Gehrig Day at games across the country in June.

Key Points: 
  • NEW YORK, May 25, 2022 /PRNewswire/ -- The Muscular Dystrophy Association (MDA) will honor Major League Baseball's (MLB) recognition of Lou Gehrig Day at games across the country in June.
  • "We commend the effort to celebrate this day of recognition across Major League Baseball.
  • "It is such an honor to see Gehrig events unfolding and expanding each year with MLB's Annual Lou Gehrig Day.
  • The MDA Tribute Tour will culminate with the Houston Astros celebration of Lou Gehrig Day on June 6.

Stanley H. Appel, MD, World-Renowned ALS Researcher and Clinician, to Receive MDA Tribute Award Honoring 40 Years of Critical Contributions in Medicine

Retrieved on: 
Tuesday, May 24, 2022
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NEW YORK, May 24, 2022 /PRNewswire/ -- The Muscular Dystrophy Association (MDA) today announced that Dr. Stanley H. Appel will receive the MDA Tribute Award on June 2 in Houston, to acknowledge his extraordinary work in pioneering ALS research and care and to celebrate the 40th anniversary of what is now the Houston Methodist Neurological Institute's MDA ALS Research and Clinical Center in Houston. Established in 1982 by Dr. Appel, the center was the first multidisciplinary clinic dedicated to ALS patient care and research in the United States. In addition to serving as Director of the MDA ALS Research and Clinical Center and Emeritus MDA Board Member, Dr. Appel is the Director of the Ann Kimball and John W. Johnson Center for Cellular Therapeutics at Houston Methodist.

Key Points: 
  • Dr. Appel is the MDA ALS Care Center Director at the first multi-disciplinary clinic for ALS patients in the US at Houston Methodist Hospital.
  • MDA will recognize Dr. Appel during its Tribute Tour celebrating local Houston champions, Care Centers, partners, volunteers, and families.
  • The MDA Tribute Award will be presented to Dr. Appel among the community he has served for 40 years.
  • The MDA Tribute Tour commenced in the volunteer state of Tennessee prior to arriving in Houston and continues to St. Louis over Labor Day.

Eastern & Western PA Harley-Davidson Dealers Associations Raise Over $900,000 for MDA at 35th Annual Ride For Life

Retrieved on: 
Tuesday, May 17, 2022
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NEW YORK, May 17, 2022 /PRNewswire/ -- The Muscular Dystrophy Association (MDA) today announced the Eastern Harley-Davidson Dealers Association with the Western PA Harley-Davidson Dealer Association 35th Annual MDA Ride for Life in Lebanon, PA raised $914,140 in support of research, care, and advocacy for people living with neuromuscular disease.

Key Points: 
  • NEW YORK, May 17, 2022 /PRNewswire/ -- The Muscular Dystrophy Association (MDA) today announced the Eastern Harley-Davidson Dealers Association with the Western PA Harley-Davidson Dealer Association 35th Annual MDA Ride for Life in Lebanon, PA raised $914,140 in support of research, care, and advocacy for people living with neuromuscular disease.
  • chapters raising money and making the trek to Ride for a Reason Ride for Life for MDA families!"
  • "13 MDA families attended throughout the weekend, and ambassadors got to ride in their favorite sidecars again!"
  • We are so grateful to Harley-Davidson Eastern and Western Pennsylvania Dealers, an incredibly generous group of people."

MDA'S Wings Over Wall Street Gala Honors ABC Eyewitness News Anchor Bill Ritter, MDA's ALS Care Center Co-Director at MGH Sabrina Paganoni, MD, PhD, Legendary Sportscaster Russ Salzberg, and Founder of Her ALS Story, Leah Stavenhagen

Retrieved on: 
Monday, May 16, 2022
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NEW YORK, May 16, 2022 /PRNewswire/ -- The Muscular Dystrophy Association's (MDA) Wings Over Wall Street gala will return in-person, after a two-year hiatus due to the pandemic, on June 9 at 6 p.m., at Guastavino's in New York City. Funds raised at the benefit will go towards MDA's ALS research, to keep the pipeline of promising therapeutics moving forward for people living with ALS (amyotrophic lateral sclerosis) aka Lou Gehrig's disease. Register to attend the event, here.

Key Points: 
  • Event to be held in New York City on June 9 to benefit MDA's ALS research.
  • NEW YORK, May 16, 2022 /PRNewswire/ -- The Muscular Dystrophy Association's (MDA) Wings Over Wall Street gala will return in-person, after a two-year hiatus due to the pandemic, on June 9 at 6 p.m., at Guastavino's in New York City.
  • Funds raised at the benefit will go towards MDA's ALS research, to keep the pipeline of promising therapeutics moving forward for people living with ALS (amyotrophic lateral sclerosis) aka Lou Gehrig's disease.
  • We are delighted to be back celebrating this event in person and are most grateful to our honorees, sponsors, and attendees."

Dutch Bros holds 16th Annual Drink One for Dane fundraiser to support the fight against ALS

Retrieved on: 
Monday, May 16, 2022
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GRANTS PASS, Ore., May 16, 2022 /PRNewswire/ -- On Friday, May 20, Dutch Bros Coffee will hold its 16th annual Drink One for Dane day. The drive-thru coffee company will donate a portion of proceeds from all of its more than 550 shops to the Muscular Dystrophy Association (MDA), the leading non-profit organization in ALS research, care, advocacy, educational and professional programming.

Key Points: 
  • GRANTS PASS, Ore., May 16, 2022 /PRNewswire/ -- On Friday, May 20, Dutch Bros Coffee will hold its 16th annual Drink One for Dane day.
  • Dutch Bros and the Boersma family started Drink One for Dane as a way to bring awareness to, and support research to find treatments and cures for, the disease.
  • Dutch Bros serves specialty coffee, smoothies, freezes, teas, an exclusive Dutch Bros Blue Rebel energy drink and nitrogen-infused cold brew coffee.
  • To learn more about Dutch Bros, visit www.dutchbros.com , follow Dutch Bros Coffee on Instagram , Facebook , Twitter , & TikTok , and download the Dutch Bros app to earn points and score rewards!

MDA Celebrates the Approval of MTPA's RADICAVA ORS to Treat ALS

Retrieved on: 
Friday, May 13, 2022
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To date, RADICAVA ORS is the sixth disease modifying drug approved to treat ALS.

Key Points: 
  • To date, RADICAVA ORS is the sixth disease modifying drug approved to treat ALS.
  • RADICAVA ORS will be made available in the United States (US) and marketed by Mitsubishi Tanabe Pharmaceutical America (MTPA).
  • "The approval of the oral formulation of RADICAVA is a helpful step forward for the ALS community," said MDA Chief Research Officer Dr. Sharon Hesterlee.
  • For more information about the phase 3 trial leading to approval of RADICAVA ORS, visit ClinicalTrials.gov and enter "NCT04165824" into the search box.

MDA Launches Pinup & Roundup Campaigns at Thousands of Retail Partner Locations Nationwide to Fund Summer Camp for Kids 8-17 Living with Muscular Dystrophy & Related Neuromuscular Diseases

Retrieved on: 
Tuesday, May 3, 2022
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"I'm excited that MDA Summer Camp is returning in-person this year as well as virtually. This hybrid model means that any child in the United States living with a neuromuscular disease—including those with less mobility--can still participate. Summer camp provides kids with new experiences that build life skills and confidence, and it also lets them form new friendships. These personal connections are priceless because they provide our kids with support throughout the year. That is why we say, 'Summer camp isn't just a place, it's a feeling.' We are so grateful to our dedicated volunteers, retail partners, and generous sponsors for helping MDA build Summer Camp back stronger!" said Alicia Dobosz, MDA's Senior Director, Recreation & Community Programs.

Key Points: 
  • Funds raised from these campaigns support research, care, and advocacy for people living with muscular dystrophy, ALS (Amyotrophic Lateral Sclerosis), and related neuromuscular diseases.
  • Following two years of virtual MDA Summer Camp, MDA is building back the in-person experience in locations across the country and continuing a virtual option.
  • MDA launches pinup and roundup campaigns at thousands of retail partner locations nationwide to fund MDA's mission including summer camp for kids 8-17 living with muscular dystrophy and related neuromuscular diseases.
  • Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases.