FOUNDATION FOR SARCOIDOSIS RESEARCH


Associated tags: Education, Patient, Research, Sarcoidosis, FSR, Pharmaceutical industry, Inflammation, Diagnosis, Hospital

Locations: ILLINOIS, US, SOUTH CAROLINA, CT, UNITED STATES, USA, CHICAGO, IL, DC, WASHINGTON, IRELAND

Foundation for Sarcoidosis Research and Walgreens Unite in Alabama to Boost Sarcoidosis Awareness and Spring Vaccine Education for April Awareness Month

Retrieved on: 
Monday, April 15, 2024

CHICAGO, April 15, 2024 (GLOBE NEWSWIRE) -- Beginning April 15th, Walgreens, a pharmacy and retail leader who plays a critical role in the U.S. healthcare system by providing a wide range of pharmacy and healthcare services, including those that drive equitable access to care for the nation’s medically underserved populations, and Foundation for Sarcoidosis Research (FSR), the leading international sarcoidosis organization, are proud to announce its renewed partnership to raise education and awareness about sarcoidosis and the importance of spring vaccinations with all Alabama-based Walgreens stores. As part of April’s Sarcoidosis Awareness Month from now through April 30th, all Walgreens stores in Alabama will join forces with FSR in an effort to spread awareness and support those affected by this chronic disease.

Key Points: 
  • As part of April’s Sarcoidosis Awareness Month from now through April 30th, all Walgreens stores in Alabama will join forces with FSR in an effort to spread awareness and support those affected by this chronic disease.
  • During this awareness campaign, Walgreens stores across Alabama will provide informational resources about sarcoidosis to their customers.
  • Every donation will directly support FSR’s initiatives to accelerate sarcoidosis research and provide crucial support to patients and their families.
  • FSR is proud to partner with Walgreens to raise awareness of the spring respiratory vaccines, which include RSV and Pneumonia.

Foundation for Sarcoidosis Research Launches Say Sarcoidosis Campaign to Shed Light on the 1.2 Million People Impacted by Sarcoidosis for April’s Awareness Month

Retrieved on: 
Monday, April 1, 2024

CHICAGO, April 01, 2024 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to finding a cure for sarcoidosis and improving care for patients, is proud to announce this year’s theme for April’s Sarcoidosis Awareness Month: Say Sarcoidosis. Sarcoidosis (pronounced SAR-COY-DOE-SIS) is an inflammatory disease of unknown cause characterized by the formation of granulomas—tiny clumps of inflammatory cells—in one or more organs of the body. Approximately 5-10% of all patients diagnosed will suffer from advanced sarcoidosis. Sarcoidosis affects the lungs in approximately 90% of cases, but it can affect almost any organ in the body and in more advanced or chronic cases can impact multiple organs at the same time. Despite its prevalence, sarcoidosis remains underrecognized and underdiagnosed, leading to delayed treatment and increased morbidity. It is estimated that 1.2 million people are affected worldwide. The Say Sarcoidosis campaign aims to shatter the silence and shine a light on the importance of speaking up about this often-misunderstood condition.

Key Points: 
  • CHICAGO, April 01, 2024 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to finding a cure for sarcoidosis and improving care for patients, is proud to announce this year’s theme for April’s Sarcoidosis Awareness Month: Say Sarcoidosis.
  • Approximately 5-10% of all patients diagnosed will suffer from advanced sarcoidosis.
  • The Say Sarcoidosis campaign aims to shatter the silence and shine a light on the importance of speaking up about this often-misunderstood condition.
  • For more information about Sarcoidosis Awareness Month and how to get involved with FSR’s Say Sarcoidosis campaign, please visit stopsarcoidosis.org/saysarcoidosis .

26 Patient Volunteer Leaders Attend the Foundation for Sarcoidosis Research Global Sarcoidosis Clinic Alliance Volunteer Patient Leadership Advanced Training Conference held at Cleveland Clinic

Retrieved on: 
Wednesday, March 27, 2024

CHICAGO, March 27, 2024 (GLOBE NEWSWIRE) -- 26 Patient Volunteer Leaders representing 16 states and 17 hospitals joined the Foundation for Sarcoidosis Research (FSR) at the inaugural FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) Volunteer Patient Leadership Advanced Training Conference held at Cleveland Clinic.

Key Points: 
  • CHICAGO, March 27, 2024 (GLOBE NEWSWIRE) -- 26 Patient Volunteer Leaders representing 16 states and 17 hospitals joined the Foundation for Sarcoidosis Research (FSR) at the inaugural FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) Volunteer Patient Leadership Advanced Training Conference held at Cleveland Clinic.
  • "We are immensely proud of the success of the FSR-GSCA Volunteer Patient Leadership Training Conference," said Mary McGowan, Chief Executive Officer of FSR.
  • The success of the FSR-GSCA Volunteer Patient Leadership Training would not have been possible without the generous support of Cleveland Clinic.
  • For more information about the Foundation for Sarcoidosis Research Global Sarcoidosis Clinic Alliance, visit www.stopsarcoidosis.org.

Foundation for Sarcoidosis Research Partners to Host 30 Volunteer Patient Leaders at Unique In-Person Training at Cleveland Clinic

Retrieved on: 
Friday, March 1, 2024

CHICAGO, March 01, 2024 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR) is honored to host its inaugural in-person training of FSR-GSCA Volunteer Patient Leaders from around the United States at Cleveland Clinic, the FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) Founding Member.

Key Points: 
  • CHICAGO, March 01, 2024 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR) is honored to host its inaugural in-person training of FSR-GSCA Volunteer Patient Leaders from around the United States at Cleveland Clinic, the FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) Founding Member.
  • This inaugural in-person training of FSR-GSCA Volunteer Patient Leaders has been structured to empower volunteer patient leaders with the skills, knowledge, and connections necessary to make a meaningful impact in the fight against sarcoidosis.
  • Cleveland Clinic is a proud member of the FSR Global Sarcoidosis Clinic Alliance and is honored to hold this training event in collaboration with FSR.
  • For media inquiries or more information about the FSR-GSCA Patient Volunteer Leaders’ Training Event, please contact [email protected] .

Tricha Shivas Promoted to Chief of Staff and Strategy at Foundation for Sarcoidosis Research

Retrieved on: 
Thursday, February 15, 2024

CHICAGO, Feb. 15, 2024 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR) proudly announces the promotion of Tricha Shivas to Chief of Staff and Strategy.

Key Points: 
  • CHICAGO, Feb. 15, 2024 (GLOBE NEWSWIRE) -- The Foundation for Sarcoidosis Research (FSR) proudly announces the promotion of Tricha Shivas to Chief of Staff and Strategy.
  • Ms. Shivas, who joined FSR in 2021 and has served FSR as the Vice President of Research and Strategic Partnerships and the Chief Strategy Officer, has played a pivotal role in the expansive growth of FSR over the last three years.
  • and caregivers committed to finding a cure and ensuring evidence-based, patient-centric care for those living with sarcoidosis.
  • “Since joining FSR three years ago, Tricha has proven to be an extraordinary leader filled with passion and expertise resulting in significant advancements for FSR,” said Mary McGowan, FSR’s Chief Executive Officer.

The Foundation for Sarcoidosis Research (FSR) awards $100,000 in support of cardiac sarcoidosis

Retrieved on: 
Monday, December 18, 2023

CHICAGO, Dec. 18, 2023 (GLOBE NEWSWIRE) -- Foundation for Sarcoidosis Research (FSR) announces $100,000 in funding for support of research aimed at improving diagnosis, management, and treatment of cardiac sarcoidosis.

Key Points: 
  • CHICAGO, Dec. 18, 2023 (GLOBE NEWSWIRE) -- Foundation for Sarcoidosis Research (FSR) announces $100,000 in funding for support of research aimed at improving diagnosis, management, and treatment of cardiac sarcoidosis.
  • With this grant, we aim to improve the specificity of cardiac sarcoidosis diagnosis with FDG-PET using a novel strategy incorporating combined SGLT1/2 inhibition with sotagliflozin.
  • “The 2023 FSR Sarcoidosis Cardiac Grant award will allow us to use the novel 3D multi-omic pathology to determine unique properties of vasculature surrounding cardiac sarcoidosis granulomas and find new potential biomarker targets and histological criteria for cardiac sarcoidosis diagnosis.
  • FSR is dedicated to accelerating sarcoidosis research through fellowships, small grants, large grants, and disease specific grants to advance sarcoidosis research and advance care for those living with sarcoidosis.

Foundation for Sarcoidosis Research Announces 3 New Members to the 40 Member FSR Global Sarcoidosis Clinic Alliance through its FSR-GSCA Capacity Building Grants

Retrieved on: 
Wednesday, November 1, 2023

FSR is dedicated to advancing the needs of all patients impacted with sarcoidosis and to closing the health care disparities gap that affects our community.

Key Points: 
  • FSR is dedicated to advancing the needs of all patients impacted with sarcoidosis and to closing the health care disparities gap that affects our community.
  • These capacity building grant recipients completed a competitive application process and have been awarded a complimentary 1-year membership (valued at $5,000) in the FSR-GSCA.
  • “Washington University is honored to become a member of the FSR Global Sarcoidosis Clinical Alliance.
  • "FSR is honored to have these three prestigious institutions join our extraordinary group of FSR Global Sarcoidosis Clinic Alliance members.

Foundation for Sarcoidosis Research announces largest Global Sarcoidosis Virtual Summit – Find Your Community, Find Your Life

Retrieved on: 
Tuesday, September 26, 2023

CHICAGO, Sept. 26, 2023 (GLOBE NEWSWIRE) -- Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to finding a cure for sarcoidosis and providing patient support, is proud to announce the 2023 FSR Global Virtual Sarcoidosis Summit, scheduled for Friday, November 3 to Sunday, November 5, 2023. This year’s theme, "Find Your Community, Find Your Life," offers opportunities for patients, their loved ones, dedicated supporters and clinical care providers to learn, network, and engage as they build their own sarcoidosis support community. Living with sarcoidosis is often characterized by unpredictability and has been described by many as isolating and mentally and emotionally challenging. This is the world’s largest virtual sarcoidosis event providing attendees with the opportunity to build their community, learn from experts, and gather resources to help them navigate their journey. It also provides the opportunities for clinicians and researchers to learn and hear directly from patients from around the world.

Key Points: 
  • CHICAGO, Sept. 26, 2023 (GLOBE NEWSWIRE) -- Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to finding a cure for sarcoidosis and providing patient support, is proud to announce the 2023 FSR Global Virtual Sarcoidosis Summit , scheduled for Friday, November 3 to Sunday, November 5, 2023.
  • Living with sarcoidosis is often characterized by unpredictability and has been described by many as isolating and mentally and emotionally challenging.
  • This is the world’s largest virtual sarcoidosis event providing attendees with the opportunity to build their community, learn from experts, and gather resources to help them navigate their journey.
  • It also provides the opportunities for clinicians and researchers to learn and hear directly from patients from around the world.

Foundation for Sarcoidosis Research partners with 95 Walgreens stores in Alabama to raise awareness of sarcoidosis and the importance of all impacted by heart and lung disease to get vaccinated

Retrieved on: 
Friday, September 15, 2023

CHICAGO, Sept. 15, 2023 (GLOBE NEWSWIRE) -- Beginning September 16th, Walgreens, a pharmacy and retail leader who plays a critical role in the U.S. healthcare system by providing a wide range of pharmacy and healthcare services, including those that drive equitable access to care for the nation’s medically underserved populations, and Foundation for Sarcoidosis Research (FSR), the leading international sarcoidosis organization, are proud to launch a partnership to raise education and awareness about sarcoidosis and the importance of vaccinations with 95 Alabama-based Walgreens stores. Now, through September 27th, customers can visit any of the participating Alabama-based Walgreens locations to learn more about sarcoidosis, meet with their Walgreens pharmacist about the importance of vaccinations, receive their free Covid vaccination, and show support by donating $1, $5, or $10 increments at checkout registers to provide education and support to the nearly 175,000-200,000 individuals living with sarcoidosis across the nation. September is the start of the vaccination season, making it the perfect time to kick-off this exciting partnership and initiative.

Key Points: 
  • September is the start of the vaccination season, making it the perfect time to kick-off this exciting partnership and initiative.
  • Sarcoidosis is a rare inflammatory disease that can impact any organ of the body and often leads to severe chronic illness and even death.
  • University of Alabama at Birmingham (UAB) Medicine is an FSR-GSCA Founding Member, providing comprehensive, collaborative care for sarcoidosis.
  • "For years, patients with sarcoidosis have been living with a chronic and debilitating disease that has no cure to date.

Foundation for Sarcoidosis Research Graduates Second Class of New Volunteers from 11 States to Raise Awareness and Improve Clinical Outcomes for Those Living with Sarcoidosis

Retrieved on: 
Tuesday, September 12, 2023

FSR-GSCA is a member program consisting of clinics, hospitals, individual providers, patients, and caregivers committed to finding a cure and offering evidence-based, patient-centric care for those living with sarcoidosis.

Key Points: 
  • FSR-GSCA is a member program consisting of clinics, hospitals, individual providers, patients, and caregivers committed to finding a cure and offering evidence-based, patient-centric care for those living with sarcoidosis.
  • A total of 61 volunteers representing 35 clinics and 22 states have graduated from this intensive two-day training for volunteer leaders.
  • "Through their unwavering dedication, FSR-GSCA Volunteer Leaders illuminate the path for those touched by sarcoidosis.
  • FSR will be accepting applications for the next class of FSR-GSCA Leaders in the near future to be trained at a later date.