Eisenhower Executive Office Building

Global Genes Heads to Washington D.C. for Rare Disease Day Events

Retrieved on: 
Wednesday, February 28, 2024
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ALISO VIEJO, Calif., Feb. 28, 2024 /PRNewswire-PRWeb/ -- Charlene Son Rigby, CEO of the rare disease patient advocacy organization Global Genes, will serve on a policy panel at the White House Rare Disease Forum as part of a week-long series of events the organization will be participating in the nation's capital leading up to World Rare Disease Day.

Key Points: 
  • ALISO VIEJO, Calif., Feb. 28, 2024 /PRNewswire-PRWeb/ -- Charlene Son Rigby, CEO of the rare disease patient advocacy organization Global Genes, will serve on a policy panel at the White House Rare Disease Forum as part of a week-long series of events the organization will be participating in the nation's capital leading up to World Rare Disease Day.
  • Rare Disease Week, held each year on the last week of February, culminates in World Rare Disease Day, which is held on the last day of February.
  • In addition to the White House Rare Disease Forum, representatives from Global Genes will be joining the Rare Disease Legislative Advocates, a program of the Everylife Foundation for Rare Diseases, for its annual Rare Disease Week on Capitol Hill for a series of meetings between rare disease advocates and lawmakers.
  • Rare disease community members unable to attend Rare Disease Week can still participate by sharing their own zebra tale.

Allegheny College Recognized by U.S. Department of Energy as One of Four Higher Education Institutions to Achieve 2023 Better Buildings Challenge Energy Savings Goal

Retrieved on: 
Tuesday, October 24, 2023
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Allegheny College is one of only four higher education institutions recognized as Better Buildings Challenge 2023 goal achievers and among only 21 higher education institutions that have committed to the challenge.

Key Points: 
  • Allegheny College is one of only four higher education institutions recognized as Better Buildings Challenge 2023 goal achievers and among only 21 higher education institutions that have committed to the challenge.
  • Allegheny College was recognized for achieving energy savings of 22 percent in 10 years by making greater efficiency accomplishments across its building portfolio.
  • The College was the only liberal arts college invited to participate in the kickoff of the Better Buildings Challenge by the Obama Administration in 2011.
  • Allegheny College embraced the Better Buildings challenge as an opportunity to save energy and improve efficiency across its 1.3 million-square-foot building portfolio.

Consumer Technology Association Joins White House to Support Cybersecurity Labeling Program to Protect Consumers from IoT Attacks

Retrieved on: 
Tuesday, July 18, 2023
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Consumer Technology Association joins White House to support cybersecurity labeling program to protect consumers.

Key Points: 
  • Consumer Technology Association joins White House to support cybersecurity labeling program to protect consumers.
  • "While walking CES this year, I saw IoT products that improve healthcare, transportation and energy efficiency.
  • While IoT makes our world better, it also tempts bad actors to exploit consumers' connected devices," said CTA president and CEO Gary Shapiro.
  • In the coming days, the FCC will launch the rulemaking process to support the Cyber Trust program.

NHIT Marks 15th Anniversary of Impact with a White House Health Equity Roundtable and Focus on the Future

Retrieved on: 
Friday, June 9, 2023
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WASHINGTON, June 8, 2023 /PRNewswire-PRWeb/ -- The National Health IT Collaborative for the Underserved (NHIT), the first and oldest national non-profit focused on equitable access to health technology for underserved communities and communities of color, celebrated its 15th anniversary today with an in-person Health Equity Roundtable with key White House and administration officials. The discussion revolved around "The Promise of Health IT Innovation and Broadband for All" and took place at the Eisenhower Executive Office Building in Washington, D.C.

Key Points: 
  • The National Health IT Collaborative for the Underserved (NHIT), the first and oldest national non-profit focused on equitable access to health technology for underserved communities and communities of color, celebrated its 15th anniversary today with an in-person Health Equity Roundtable with key White House and administration officials.
  • While marking its 15 years of community impact, NHIT is also focused on the future with the recent expansion of the NHIT Data Fusion Center in collaboration with Amazon Web Services and Tyler Technologies.
  • He added, "If we are going to address the health equity gap, strategic investments are of great importance, but they cannot be at the expense of underserved communities.
  • NHIT has advocated for this approach for 15 years, and we are immensely proud to work side by side with the Biden Administration to go from conception to execution."