Education,
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Medal,
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World Neurosurgery,
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Pharmaceutical industry WASHINGTON, April 15, 2024 /PRNewswire/ -- The American Association of Kidney Patients (AAKP), America's oldest and largest independent kidney patient advocacy organization, awarded its 2024 Medal of Excellence Award in the Physician Category to Dr. Barry Smith, PhD, MD, President of New York-based Dreyfus Health Policy and Research Center. The AAKP announcement occurred during the 50th Anniversary Meeting of the Renal Physicians Association (RPA) in Baltimore, Maryland.
Key Points:
- The RPA is a long-standing ally of the AAKP and is the professional organization of nephrologists whose goal is to ensure quality care under the highest standards of medical practice for patients with kidney disease and related disorders.
- Dr. Smith was selected as a Physician Honoree based on his distinguished career spanning academia, government, and clinical care management and his dedicated efforts to expand patient engagement in infection prevention and medical innovation.
- Dr. Smith is highly regarded for his focus on disease prevention through better community education on issues including food choices and nutrition as well infection prevention through improved safety measures and access to new safety innovations.
- The Medal of Excellence includes award categories in transplant surgery, transplant professional, physician, nursing, dietitian, social work, and dialysis technician.
Hyperphosphatemia,
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Nutrient,
Hyperkalemia,
Congress,
Patient,
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Medicare,
Physician,
Pharmaceutical industry WASHINGTON, April 4, 2024 /PRNewswire/ -- The American Association of Kidney Patients (AAKP), the oldest and largest independent kidney patient consumer organization in the U.S., is raising public awareness on April 5, National Phosphorus Awareness Day, about the devastating impacts of unmanaged phosphorus levels in individuals with advanced chronic kidney disease (CKD).
Key Points:
- Kidney patients are at an increased risk for high phosphorus (termed hyperphosphatemia) due to their decreased kidney function and an inability to excrete excess nutrients, including phosphorus.
- Kidney patients are medically complex and typically manage multiple co-related health conditions including hyperphosphatemia , hyperkalemia , CKD associated pruritis (CKD-aP) , and more .
- Kidney patients and all people of goodwill involved in the fight to improve kidney health are making their voices heard by contacting their U.S.
- Since 1969, The American Association of Kidney Patients has been a patient-led organization driving policy discussions on kidney patient care choice and medical innovation.
Hospital,
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Patient,
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Diabetes,
Chronic kidney disease,
Social media,
Ageing,
Loneliness,
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Veterans' affairs,
Emergency department,
CDC,
ESRD,
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COVID-19 vaccine,
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Public WASHINGTON, March 7, 2024 /PRNewswire/ -- Today, the American Association of Kidney Patients (AAKP), the largest and oldest independent kidney patient organization in the nation, issued an Official Statement (appears below) in response to the Center for Disease Prevention and Control's (CDC) new Respiratory Virus Guidance, publicly announced on March 1, 2024. The CDC announcement occurred on the first day of National Kidney Month. March traditionally unites kidney stakeholders and people of goodwill in efforts to raise awareness of kidney diseases, address ongoing unmet patient needs, and advocate for removal of federal regulatory and payment barriers that impede access to, and development of, new kidney diagnostics, drugs, and devices.
Key Points:
- Mortality rates among kidney patients occurred at historic levels at the start of the COVID pandemic, devastated the kidney patient community and families, and this community's ongoing risks remain a strategic concern among patient advocates and allied kidney professionals.
- AAKP also raised kidney patient health and safety concerns to CDC officials in stakeholder briefings prior to the March 1, 2024, CDC Respiratory Virus Guidance announcement.
- The American Association of Kidney Patients (AAKP), the nation's largest and oldest independent kidney patient organization in the nation, is deeply concerned about the Center for Disease Prevention Control's (CDC) Respiratory Virus Guidelines, including for COVID, announced on March 1, 2024.
- https://www.cdc.gov/mmwr/volumes/73/wr/mm7308a5.htm
Since 1969, The American Association of Kidney Patients has been a patient-led organization driving policy discussions on kidney patient care choice and medical innovation.
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Society,
The Wall Street Journal,
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ASTS,
HHS,
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Bleeding,
Life,
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Biopsy,
Congressional Black Caucus,
Health equity,
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Pharmaceutical industry WASHINGTON, Feb. 9, 2024 /PRNewswire/ -- Today, the American Association of Kidney Patients (AAKP), the largest and oldest kidney patient organization in the nation, issued an Official Statement (appears below) and an AAKP Closer Look report highlighting a new, double standard and unequal access for Medicare kidney transplant recipients who rely upon molecular blood tests for organ health surveillance and the identification of early organ rejection. Kidney disease and kidney failure disproportionately impact minority Americans. Federal data consistently demonstrates that, among historically disadvantaged communities, there are tremendous barriers and lack of opportunity to receive a kidney transplant and furthermore, re-transplantation when a donor organ fails.
Key Points:
- The new restrictions severely limit Medicare patients and transplant professionals from accessing molecular blood tests, covered by Medicare and utilized since 2017.
- It is absolutely clear this is a new double standard for Medicare transplant recipients.
- Today, Medicare patients with a kidney transplant in South Carolina and across the nation face the new reality of unequal treatment to protect their precious gifts of life.
- Their failed leadership has empowered unelected, unaccountable, and faceless for-profit contractors to make life and death decisions that negatively impact kidney transplant patients on Medicare.
Retrieved on:
Wednesday, August 9, 2023
WASHINGTON, Aug. 9, 2023 /PRNewswire/ -- The American Association of Kidney Patients (AAKP), the nation's oldest and largest independent kidney patient organization, hosted its 6th Annual Public Policy Summit entitled "Issues and Implications: What Kidney Patients Need to Know" on July 28, 2023. Congressman Jerrold Nadler (D-NY), co-sponsor of the bipartisan Living Donor Protection Act (H.R 2923 / S.1384), headlined the event as an honored special guest. Congressman Nadler discussed the origin and intent of the legislation with AAKP President Edward V. Hickey, III, USMC (WATCH DISCUSSION HERE). AAKP is a leading advocate for greater patient consumer care choice, patient-centered care and treatments – such as kidney transplantation - that best empower patients to fulfill their aspirations, including ongoing full-time or part-time work in their chosen trade or profession.
Key Points:
- Congressman Jerrold Nadler (D-NY), co-sponsor of the bipartisan Living Donor Protection Act (H.R 2923 / S.1384), headlined the event as an honored special guest.
- The legislation was introduced in the Congress on April 27th by Congressman Nadler, Congressman Troy Balderson (R-OH), Congresswoman Lisa Blunt Rochester (D-DE), Congressman Jim Costa (D-CA), Congressman John Curtis (R-UT), Congresswoman Diana DeGette (D-CO), Congresswoman Mariannette Miller-Meeks (R-IA), Congressman Gregory F. Murphy, M.D.
- Over 37 million people suffer from kidney disease, over 700,00 live with kidney failure, nearly 100,000 are on the waiting list for a kidney transplant.
- Key elements of AAKP's National Kidney Patient Consumer Policy Agenda , as outlined during the organization's 2022 Policy Summit , were highlights of the day.
WASHINGTON, July 13, 2023 /PRNewswire/ -- The American Association of Kidney Patients (AAKP), the largest independent kidney patient organization in the USA, and its strategic partner, The George Washington University (GW) School of Medicine & Health Sciences (SMHS), hosted their 5th Annual Global Summit on Kidney Disease Innovations on June 28-29, 2023. The Global Summit encourages participants to collaborate to advance science and medical innovation, advocate for more common-sense regulatory and payment policies, and to remove barriers to new life-saving treatments and cures. AAKP believes patients have a valid and rightful voice in the medical and policy decisions that impact their lives.
Key Points:
- AAKP believes patients have a valid and rightful voice in the medical and policy decisions that impact their lives.
- In the United States, over 37 million people suffer from the disease, over 700,00 live with kidney failure, and nearly 100,000 await a kidney transplant.
- An international panel on unplanned events impacting kidney patients provided timely lessons learned from responses to earthquakes, hurricanes, and the war in Ukraine.
- American Association of Kidney Patients (AAKP): Since 1969, AAKP, as a patient-led organization, has shaped national debates on care choice and medical innovation.
Kidney disease,
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Chicago Innovation Awards,
American Kidney Fund,
HHS,
Office of Inspector General, U.S. Department of Health and Human Services,
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Capitol Hill,
Executive order,
George Washington University School of Nursing,
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Pharmaceutical industry WASHINGTON, July 10, 2023 /PRNewswire/ -- The American Association of Kidney Patients (AAKP), the largest independent kidney patient organization in the nation, celebrated the fourth anniversary of the historic 2019 Executive Order on Advancing American Kidney Health by recognizing The Honorable Alex M. Azar, II, the 24th Secretary of the U.S. Department of Health and Human Services (HHS), with its inaugural Global Kidney Leadership and Innovation Award. The award was presented during the fifth annual Global Summit on Kidney Disease Innovations on June 28, 2023, in Washington, D.C. The Global Summit is a partnership of AAKP and The George Washington University School of Medicine and Health Sciences (GW/SMHS). The hybrid event reaches over 100 countries and has gained an audience among tens of thousands of patients and kidney stakeholders worldwide.
Key Points:
- WASHINGTON, July 10, 2023 /PRNewswire/ -- The American Association of Kidney Patients (AAKP), the largest independent kidney patient organization in the nation, celebrated the fourth anniversary of the historic 2019 Executive Order on Advancing American Kidney Health by recognizing The Honorable Alex M. Azar, II, the 24th Secretary of the U.S. Department of Health and Human Services (HHS), with its inaugural Global Kidney Leadership and Innovation Award.
- The hybrid event reaches over 100 countries and has gained an audience among tens of thousands of patients and kidney stakeholders worldwide.
- Secretary Azar, whose father was a kidney dialysis patient and kidney transplant recipient, was the architect of the Executive Order on Advancing American Kidney Health .
- He also credited kidney patients as experts and as the "group whose knowledge, sense of urgency, and clarity about the burdens of kidney disease rises above all others."
OnDemand,
Partnership,
Kidney failure,
Chicago Innovation Awards,
U.S. Department of Defense Strategy for Operating in Cyberspace,
HHS,
Tomorrow's India Global Summit,
Capitol Hill,
Executive order,
George Washington University School of Nursing,
Office of Inspector General, U.S. Department of Health and Human Services,
Policy,
Bass,
Veteran,
Kidney disease,
Transplant,
Organization,
U.S. Department of Labor, Office of Inspector General,
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Mortality,
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Family,
Labour,
Commerce,
U.S. Department of Commerce Office of Security,
Pharmaceutical industry,
Nursing WASHINGTON, June 26, 2023 /PRNewswire/ -- The American Association of Kidney Patients (AAKP), the largest independent kidney patient organization in the nation, today announced that The Honorable Alex M. Azar II, former Secretary of the U.S. Department of Health and Human Services (HHS), will receive the inaugural Kidney Leadership and Innovation Award at the patient-led 5thAnnual Global Summit on Kidney Disease Innovations.
Key Points:
- WASHINGTON, June 26, 2023 /PRNewswire/ -- The American Association of Kidney Patients (AAKP), the largest independent kidney patient organization in the nation, today announced that The Honorable Alex M. Azar II, former Secretary of the U.S. Department of Health and Human Services (HHS), will receive the inaugural Kidney Leadership and Innovation Award at the patient-led 5thAnnual Global Summit on Kidney Disease Innovations .
- Founded in 2019, the Global Summit is a partnership of AAKP and the George Washington University School of Medicine and Health Sciences (GWU/SMHS).
- Further, the Global Summit encourages all participants to collaborate to achieve more common sense regulatory and payment policies that align, and not hinder, rapid innovations in kidney care that will save more lives.
- Secretary Azar and his team actively engaged all kidney community stakeholders, particularly kidney patients, to gain insights on the barriers and opportunities for innovations in kidney care.
Among the most devastated populations were immunocompromised kidney patients on dialysis and immunosuppressed kidney transplant patients—especially people from Black and Brown communities.
Key Points:
- Among the most devastated populations were immunocompromised kidney patients on dialysis and immunosuppressed kidney transplant patients—especially people from Black and Brown communities.
- Mortality rates for kidney patients have been unprecedented and deeply troubling, and have brought renewed national attention to the shortcomings of status quo kidney care.
- The American Association of Kidney Patients (AAKP) is the oldest and largest fully-independent kidney patient organization in the United States and the strongest advocate for kidney patient consumer care choice.
- AAKP announced the start of the Decade of the Kidney™ in June of 2019, and since 2018, has conducted the largest voter education and registration drive in history among kidney patients, caregivers, and healthcare professionals aimed at increasing the kidney patient voice in policy decisions as Kidney Voters.
WASHINGTON, May 10, 2023 /PRNewswire/ -- As the COVID-19 public health emergency comes to an end, the American Association of Kidney Patents (AAKP), as the oldest and largest patient-led kidney patient advocacy organization in the nation, offers a simple request, on behalf of the millions of immunocompromised kidney disease and dialysis patients and immunosuppressed kidney transplant patients, to policymakers: "Don't you forget about me." AAKP welcomes the many successes America has achieved in the battle against COVID-19 and the opportunity many Americans now have to once again pursue their aspirations. The end of the public health emergency (PHE) was made possible by the ingenuity and dedication of researchers, scientists, medical professionals, public servants, pharmaceutical industry workers, and the enormous generosity of American taxpayers. It has also come after the loss over one million innocent American lives and tens of thousands more who remain debilitated from long COVID.
Key Points:
- The end of the public health emergency (PHE) was made possible by the ingenuity and dedication of researchers, scientists, medical professionals, public servants, pharmaceutical industry workers, and the enormous generosity of American taxpayers.
- We also remind government leaders and health insurance executives that science and data show today is not "a different day" for everyone.
- COVID-19 remains a serious concern for immunocompromised kidney disease and dialysis patients and immunosuppressed kidney transplant patients, many of whom suffer from multiple chronic conditions.
- Follow AAKP on social media at @kidneypatient on Facebook, @kidneypatients on Twitter, and @kidneypatients on Instagram, and visit www.aakp.org for more information.
