FOUNDATION FOR SARCOIDOSIS RESEARCH LAUNCHES ITS FIRST-EVER CLINICAL TRIAL EQUITY INITIATIVE FOR BLACK AND AFRICAN AMERICANS
CHICAGO, Sept. 15, 2022 /PRNewswire/ -- The Foundation for Sarcoidosis Research (FSR) is proud to announce the launch of the Ignore No More: ACTe Now! (Advance Clinical Trials for Equity in Sarcoidosis) campaign. The goals of this campaign are to increase representation of Black American sarcoidosis patients in clinical trials, raise awareness of disparities that exist in sarcoidosis, identify the challenges and barriers that contribute to lower participation by Black Americans in clinical trials, and to provide recommendations that foster a more inclusive approach to recruiting patients for clinical trials and research.
- Black Americans are 2.5 times more likely to have sarcoidosis and are 12 times more likely to die from sarcoidosis than White Americans.
- While Black Americans are disproportionately impacted by chronic illnesses and diseases across the spectrum, they are significantly underrepresented in clinical trials and research.
- "It is imperative to increase representation of Black Americans in clinical trials and research efforts in order to close the gap in care and improve patient outcomes for Black Americans with sarcoidosis," said Mary McGowan, Chief Executive Officer for FSR.
- The Foundation for Sarcoidosis Research (FSR) is the leading international organization dedicated to finding a cure for sarcoidosis and to improving care for sarcoidosis patients through research, education, and support.